Friday, January 2, 2009

A little more clarity

This week our neurologist called twice to discuss the results of the EEG and the MRI. The first time he called he just talked about the EEG. He said that the jumps she does and when she stares of into space are not seizures, however her overall EEG is abnormal and she is having some mild seizure activity in the left frontal lobe. So that is why they still want her on seizure meds and he said that her jumps are certainly interesting and may be causing her not to get as much sleep as she needs. When I asked about the MRI he said he didn't have those results and would call back when he did. Well he called back on Wednesday while I was taking Hannah for her pre op for her endoscope. He talked to Ben so I may have to call to get further information, but what Ben did understand him to say is that the subdurals are basically gone which is good news. We are hoping that maybe that means when we see the neurosurgeon maybe he can take the shunt out. I asked Ben about the damage to the white matter and Ben was a little confused about what the neurologist said about that. He did understand him to say that they are still reviewing it and may or may not do further testing. Please pray that they will get a clear picture of what's going on and how to fix it. Please also pray for Hannah's endoscope on Monday. This will decide if she is a candidate for doing the reflux surgery. While the thought of surgery is always scary, we are honestly hoping that she can have the surgery and that it will bring her some relief. I guess that's all for now. Happy New Year! We are praying and ask you to join us as well, that 2009 will bring answers and solutions for our precious baby. My God Bless you all with a happy and healthy year.

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