I took Hannah to the GI to follow up from the hospital today. He said even though her stomach was a little slow emptying its not a big deal. He doesn't think we should do the reflux surgery, but gave me the names of some surgeons if I wanted to talk about it with them. He said I could make a case to do it, but he thinks I'm putting too much hope that it will solve all her problems. I got the feeling that he thinks I'm a mama who's just tired of cleaning up spit up. Yes I am tired of it and I don't want to rush to surgery if it won't help, but mostly I want me baby to feel good. I think its a problem that she never feels good, that she has to wear a heart monitor until they figure out the reflux, that she has to wear a bib all the time b/c you never know when she's going to spit up, and that I have to change her sheets almost every night because she spits up and then can't move away from it and just lays in it! When I said this to him, he was like "well maybe you should talk to the surgeon but they will probably want to do a g tube (a feeding tube) with the fundoplycation". That scares me to death. After much discussion, I did get him to prescribe erthromicin to make her stomach empty faster in hopes that it would help cut down the reflux, but I think he did it just to pacify me. I understand that my baby is just one of the hundreds of patients each DR sees, but can't even one of them understand that my baby is the only little girl I have and I just want someone to help her get better?
We are starting feel like everyone in the ATL medical profession has just given up on her. We are thinking about taking her to Duke to get a second opinion for everything. If you know how we go about doing this, please let us know. Please pray for wisdom and guidance for what to do next. We are so frustrated. Please pray that God will work outside of the DRs so there will be no other explination other then He showed up.