The first transition meeting went pretty well. It was basically a time to get a little info about Hannah and to decide when the evaluation will be. The school social worker had tentatively set up Hannah's eval for July 29th, when I questioned if all the therapists would be back by then and that I would not agree to the eval unless a PT, an OT, a Speech and Vision therapist were all there. My babies can't wait coordinator laughed and said "see I told you this Mom knows everything." So now Hannah's eval will either be July 29th or Aug. 11th depending on when the therapists are all back from Summer Break. After the meeting they took us to see two classes at Oakland Meadow. One was much higher functioning then the other. We have been encouraged to look at cross categorical class at a regular elementary school as well. Hannah would be on the lower end of function in that class, but if she can prove she is cognitively capable of being in that class it will be better in the long run. Please pray for this process through the summer. Pray that Hannah will truly show what she is able to do in the eval, and that we will have great wisdom as to the class that will provide her with the most attention, as well as the most opportunities to really learn.
Hannah is getting her teeth cleaned on Monday and then no more appointment (outside of therapy) until April 15! Yeah. Enjoy this lovely weather.

Catching up...its a long one.

I know it has been a while and I'm sorry. To be honest I just haven't had much energy to write lately. It has been a busy month both for Hannah and for the rest of the family. To add to that Hannah is not sleeping well at all. It takes several hours to get her to go to sleep and then she wakes up several times during the night. Hannah's sleep habits have been extremely taxing on the whole family. This weekend we were a host home for D-NOW for the youth at our church. We had 6 high school boys stay with us all weekend. The sad thing is that it wasn't the boys that caused lack of sleep in the house it was Hannah (at least the second night). The first night of the weekend both kids stayed with my blessing of a friend Pam, and even though I knew my house would be over run with boys, I was so excited to finally get a good night's sleep. Isn't that sad! Please pray that we can figure out a way to help Hannah get to sleep and stay asleep.
On Tuesday Hannah went to a mid year check up at the pediatrician. Overall the Dr was pleased with Hannah's health and developmental progress. She was a little concerned about Hannah's weight because according to her scales Hannah had lost over two pounds, but I really feel like it was a fluke. Most of the concerns I brought up to the DR ( like the sleep stuff) she either wasn't concerned about or told to me to talk to one of the other specialists. So overall it was a little bit of a waste of time.
On Friday she went to the GI. According to her scales Hannah's weight was only a few ounces less, but she had gained over 2 inches since January. I definitely think Hannah has had a huge growth spurt recently, but I'm not sure it was two inches. We mostly talked about how the Nexium was working and how that at least 50% of the time when Hannah is arching the Maaloxx does help her stop so that means that the arching is at least partially GI related. Unfortunately, Hannah is already at the strongest dose she can take of the Nexium and is still refluxing and arching a lot. She wants me to start back giving Hannah the erthomicin, but when I went to fill it this weekend I was told they no longer make it in a suspension so I will have to either go to a compounding pharmacy or get something different. Please pray that we can find some permanent relief to all of this GI stuff. One nice thing at the end of the appointment the DR said, "You are the best mom.... you are so on top of everything and really know exactly want is going on with your daughter." That made me feel really good.
Coming up in the next few weeks Hannah will make the rounds to all her specialists. This week she will go to have her AFOs checked. Since her feet have grown, I'm hoping he will make new ones, but I don't know if insurance/medicaid will pay for them. Then the next big thing is on Monday March 22, we will take Hannah to start the transition process that will put her into the school system when she turns 3 in September. Please start bathing this process in prayer. Pray that God will give us wisdom as to exactly the right class and school for Hannah to be at. Pray that as she's evaluated she will give them a true picture of what she is actually capable of doing. And pray for my momma heart as I will send both my babies to all day school in the fall, as Joseph will start Kindergarten. Well I guess that's everything. Thank you for always remembering our sweet girl in prayer. We truly feel and appreciate them.