We had what was supposed to be a 48 hour EEG on Monday. When the neurologist ( same practice but new to us) came in on Monday he decided to order an MRI for Tuesday afternoon. On Tuesday he stopped the EEG because he said that her jumps aren't really seizures. I'm confused by this b/c I don't know how they could go from being to seizures to not being seizures and if they're not then why do they still want her to be on seizure meds? Anyway he said that the reason he wanted to do an MRI is because her brain waves on the EEG were slow for her age and she seemed to have some characteristics of a couple rare disorders that affect the white matter in the brain. I'm still not totally sure what the white matter is or does. She came through the MRI fine and after his initial review of it he said that although there are some abnormalities to the white matter they appear to be there from way back and don't appear to be these rare disorders. He said he may do some further testing just to be sure but he wanted to see what the full report of the MRI said. So we left the hospital with even less answers then we went in. Although I was glad to get to come home a day early, I was/am a little depressed that everyone knows that something is wrong with Hannah, but yet can't figure out what exactly is wrong and certainly not how to fix it. Please pray that 2009 will be a year of answers and healing for this precious child. I am so glad 2008 is almost over and praying that 2009 will be better. Thank you all for being so faithful to pray for Hannah and our family. We covet your prayers.

Hannah's been pretty sick this week. I was scared to take her to the Dr b/c Thursday was my birthday and last year the pediatrician said " I think she's blind" on my birthday. That started this whole roller coaster we've been on this year. When she wasn't getting any better I finally took her on Friday. Turns out she has a double ear infection and bronchitis. Poor baby is absolutely miserable. Please pray she feels better soon.
Other then that no real news. We go in for the 48 hour EEG on Monday. Please pray that the Drs will get a clear picture of what kind of seizures Hannah is having and how to treat them. Please pray also that Hannah will tolerate being in the crib for 2 days. We will get out of the hospital on Christmas Eve. Her endoscopy will be January 5th.
On a lighter note Hannah and Joseph got to see Santa 3 times this week. I think Hannah really likes his red suite b/c she always gave him the most intense look. I've added a picture of them with Santa. Merry Christmas!

We got the results back from the blood work the GI did and everything is fine. No allergies, no problems with her liver or gallbladder. SO I guess we are going to schedule to endoscopy. When the nurse called to tell me the results, she said to give the diet changes two more days even though they were not helping and then call her back to decide the next step. I called yesterday and today and big surprise I can't get her to call me back. I know DRs see a lot of patients, but isn't there anyone that will actually call back!!!! ARGH!!!.
On another note the hospital scheduled her 48 hr EEG for Dec 22-24th. Yeah right before Christmas. So now I'm trying to get everything done before then. I hope though that they will get a clear picture of the kinds of seizures she's having and how often she's having them. Please pray that DRs will figure both the seizures and the reflux out. All I really want for Christmas is some answers and a plan to go from here.

This week as been pretty busy with Drs appointments. On Monday, Hannah saw her neurologist. I was hoping he would see progress in her but he didn't really even look, he mostly just talked about the seizures. He officially used to word epilepsy, which was a little disturbing, but he said that's what it is called when you have seizures on a regular basis. I guess its just a word.
On Wednesday I finally took Hannah to a GI dr. His million dollar question as well as everyone else is why it took so long. He is concerned Hannah may have a milk allergy and taking her completely off cow's milk. He was also concerned about her liver and gallbladder. So he sent us for a lot of blood work. Depending on how the change in diet goes as well as what the blood work shows he will then decide what to do next. Probably the next step will be an endoscopy and a ph probe. Please pray that the right decisions will be made and Hannah can start getting some relief. Several people feel like especially if the pediatrician missed an allergy I should switch, but I'm kinda at a loss about that. I mean this ped is a lot better then the ones I took Joseph to when he was a baby, but yet there have been a lot of things she has missed. Please pray for wisdom and discernment for us as to if we should stay with this ped or find another and if we find another that it will be very clear who to use. Thank you for praying for us we can truly feel them.