Saturday, December 27, 2008
We had what was supposed to be a 48 hour EEG on Monday. When the neurologist ( same practice but new to us) came in on Monday he decided to order an MRI for Tuesday afternoon. On Tuesday he stopped the EEG because he said that her jumps aren't really seizures. I'm confused by this b/c I don't know how they could go from being to seizures to not being seizures and if they're not then why do they still want her to be on seizure meds? Anyway he said that the reason he wanted to do an MRI is because her brain waves on the EEG were slow for her age and she seemed to have some characteristics of a couple rare disorders that affect the white matter in the brain. I'm still not totally sure what the white matter is or does. She came through the MRI fine and after his initial review of it he said that although there are some abnormalities to the white matter they appear to be there from way back and don't appear to be these rare disorders. He said he may do some further testing just to be sure but he wanted to see what the full report of the MRI said. So we left the hospital with even less answers then we went in. Although I was glad to get to come home a day early, I was/am a little depressed that everyone knows that something is wrong with Hannah, but yet can't figure out what exactly is wrong and certainly not how to fix it. Please pray that 2009 will be a year of answers and healing for this precious child. I am so glad 2008 is almost over and praying that 2009 will be better. Thank you all for being so faithful to pray for Hannah and our family. We covet your prayers.
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