I know it has been awhile, but the month of December has just flown by. We had a lovely holiday. Hannah got a lot of neat things. Her two favorites are a doll that Grammy made that says "Grammy Loves You" and an Elmo that Poppy adapted to use with a switch. Today with her vision therapist Hannah was really into "showing off" all her new things. She was really reaching and pushing different buttons. When the therapist asked Hannah where her Elmo guitar was she rolled over and looked right up at it. That was very cool. Her therapist took pictures of a lot of her toys on a plain background so that we can start introducing pictures for her to make choices with. This is all in hopes of helping her communicate better.
The visit with the neurologist didn't go as well as I had hoped. She was very pleased with Hannah's progress, however she was very busy and left the room before I got to ask her most of my questions. She did order a sleep study after I showed her video of Hannah's jumps. Before the video she was trying to tell me that she didn't think the jumps were seizures, but after the video she uped her seizure meds and ordered a sleep study. It will be on January 10th. She wonders if the jumps have something to do with Hannah's O2 levels. Although that has never seemed to be a problem, we will just have to wait and see what the sleep study says.
The neurologist also wants me to take Hannah to a new GI. She feels like the arching is still GI related. When I called the ped. to get a referral for the GIs that the neurologist had suggested, she wasn't really happy with any of them. SO I'm really wondering what this new GI will say. Hannah goes to him next Wednesday. Please pray that this GI will be nicer then the last one and will really try to help Hannah. I don't care if the arching is neurological or GI related, I just want someone to figure out a way to help Hannah stop doing it. Please pray that I will not be frustrated and that I keep pressing until I find someone who will actually help her.
May God Bless you and Yours with a Happy and Healthy 2010.

Polar Express and Other Things

We had a great Thanksgiving at Ben's Parents house. The best part of the trip was taking the kids to ride the Polar Express. Both kids loved seeing Santa, riding the train, and getting a bell from Santa's sleigh. When Santa came in Hannah was very vocal to him, almost like she was trying to tell him what she wanted to for Christmas. In general Hannah is becoming more vocal and every now and then it sounds like she is making actual words. We have heard her "say" her name, Mom, I'm, and Hi. We are encouraged that maybe she is making progress in this area of development. However, on the flip side her seizures, or jerks or whatever they are when she sleeps have returned with a vengeance. She is jerk almost constantly even a little bit before she goes to sleep. She is waking up several times during the night screaming. I'm not sure if these jerks are hurting her or scaring her but they are definitely affecting her sleep (as well as mine!). She is also staring off more often and 2 of her therapists saw her do this this week and both asked if it was a seizure. When she comes out of those she's really fussy as well. Hannah will see her neurologist on Friday the 11th. Please pray that Dr. Weissman will really try to figure out what is going on and not just keep uping her meds. I really feel like there is more going on with Hannah then just CP, but nobody is really looking for the cause of all these symptoms. Please pray that Dr. Weissman will order new tests and really look at what's going on in Hannah brain. Thank you for your continued prayers.