STEPS!!!!

Yesterday in PT Hannah took 25 steps with the theropist holding her up! This is huge because this means that even though she doesn't have to strength to walk on her own yet she has the drive and the know how. Please pray that she will continue to make these steps and that she will gain the strength to one day walk on her own.

The EEG

Hannah I came home from the EEG yesterday. She did much better this time then she did in December. She slept for longer periods of time and I think they got a good picture of her jumps. On Tuesday the Dr said that he had only reviewed one section of tape and could neither rule in or rule out that these jumps are seizures. He said that her EEG is abnormal and that there are some spikes that would indicate seizures, but that these spikes don't always correlate with when she is jumping. He said that it is possible that a part of her brain that is too deep to be truly picked up by the EEG is seizing. He plans to review all of the tape and we will have results in about a week or two. Although, I'm doubtful that they will actually be able to identify what's going on, I'm glad that they actually saw what I am seeing at home and agree with me that whatever it is, it is not normal. Hopefully, this latest EEG will give the new neurologist some information to work with when we see her in August. Please pray that they will get an idea of what these jumps are and how to control them. Please also pray that this new neurologist will be a better fit for us.

Getting Ready for the EEG

Not much has been going on lately. We've been really busy with VBS and other fun events, which is great fun, but it means that Hannah doesn't get to have as much time working on her skills. She did have her first speech therapy last Thursday. My MIL stayed with her and really didn't have much to say about it so I'll keep you posted on how that's going.
We go in Monday for her second Video EEG. I will start weening her off her meds on Thursday. Please pray that she will not have anymore or different seizures while she is off, but at the same time the doctors will get a clear understanding of what she is doing. Please pray that Hannah will sleep a lot because she only jumps in sleep. Pray that she will tolerate being in a bed hooked to wires for 2 days. Pray that I will have patience and wisdom when I'm dealing with the doctors. Pray also for big brother Joseph. He's been acting out a lot lately and has been really clingy. He's supposed to spend at least one of the nights while we are in the hospital with some good friends, and go to VBS at their church. However, he's never spent the night with them and he's never been to their church so this may be stressful for him. He came home tonight from my dear friend Pam's house where he usually begs to spend the night at, so obviously he's got something he's dealing with. I also want to thank God for Pam. She is such a blessing in my life and I could not have made it through all of this with out her. Thank you for praying over this little child and our family. It means the world to us.

Hannah had her six month OT evaluation yesterday and had made good progress. Last time she her average score was in the 1 to 3 month level for fine motor skills, with her highest score in the 6 month range. Yesterday her average score was in the in 4 to 6 month level, with her highest score in the 9 month range. Her OT said she just can't get over how much progress Hannah is making. She is really working hard on head control and is reaching for things now. If she could keep her hand open so that she could grab things she would be even higher. It is nice to see measurable progress.
Hannah will be admitted into Scottish Rite on the 22nd of this month for another 48 Hour video EEG. This is the same thing she had right before Christmas, but this time they will take her off her seizure meds. The doctors are still trying to determine if the jumps she does when she is sleeping are seizures or not. Please pray that she will sleep and that they can get a clear understanding of what is going on. The last several days her jumps have gotten more frequent then they have been. Please pray that whatever these jumps are, are not doing more damage to her brain. Thank you for all your prayers. I know they are helping.