We've been really busy with lots of doctors appts and things lately. Hannah got her wheelchair in time for Disney. They have to do some modifications to it but overall its pretty good. She seems to tolerate it pretty well. She is getting her AFOs (ankle foot orthotics) to help her with her balance and toe curling on Tuesday. I'm sure she will take some time getting used to them, but I know they are supposed to help. We saw her orthopedist for the first time yesterday. He is really nice and has good bedside manor. He said that he is not concerned about her neck turn, he said that it is either a reflex that she hasn't out grown yet, or it is tied to her reflux. He said it could be a combination of both. Her PT is concerned that Hannah is "frog-legging" and that something may be wrong with her hips, but he said that they actually like to see that because it is a defense mechanism to prevent dislocating her hips. He did take xrays just to be sure. He said that her heel cords are really tight, but that the AFOs and being in the stander will help with that. So over all good visit. Only bad note is that Hannah has a double ear infection which is not good. Hopefully she will be all better in time for Disney. Thank you for all your prayers and concern. I can't believe that Hannah will be 2 yrs old next week.

New Neurologist

We finally met the new neurologist today and I think maybe we've finally found a good match for us. She is very direct and a little blunt, but she spoke to both Hannah and me like we were human beings. She was decisive and took action right away. She ordered an ambulatory EEG because she wants to see the EEG for herself and not just the report. Her old neurologist would not do an ambulatory one b/c he said she was too young. In an ambulatory EEG she will go and have the machine hooked up to her and then she will come home with it for 24 hrs, then have it taken off the next day. She also ordered lab work, wrote a prescription for Hannah to get AFOs and increased her meds all on the first visit. I really like that she is taking action right away and not having this wait and see approach a lot of Hannah's DRs have. The thing I like most of all is that in the middle of her exam of Hannah she looked me straight in the eye and said "Its in there, Mom. Its there, we just have to help her get it out." Finally a professional can see that there is a lot going on in Hannah's mind she just doesn't have a means to express it. She really encouraged me to join Lekotek which is a group that helps with communication through play, music, and computers. I called them when I got home and there is a 3 to 6 month waiting period, but once it goes through it will be a good thing.
On another note Hannah gets her wheelchair on Tuesday, that's kind of a bitter sweet thing. I know at least when we are out it will be a great help to me, but it will be hard to see her in it. Also until we can move, (which we've had absolutely no traffic on our house and we lost the one we wanted) it is not going to be much of a help at home. I may not even bring it in the house.
I guess that's the news for now. Thanks for your continued prayer and support of our family.