Well its been a week since the staples came out and there are still no signs of infection. Praise the Lord!! She did come down with a weird rash this week but the ped. said it was a contact rash and the ointment she gave me is working after two doses.
I took Hannah for another session with the neurolink guy. I can tell a difference in her turning to her left more and her eyes are undenably better. However, I'm cautious to say I see improvements because I want to make sure they are really there and not just because I want to see improvements. If you see improvements please let me know. Our biggest prayer concern right now is her digestion issues. We really thought the goats milk was helping her reflux and she wasn't getting constipated, however this weekend she was was doing both really badly. I'm beginning to see a coralation between how things move through and how bad she refulxes. But what do I know I'm just the mom.

Hannah is doing really well with the shunt out. Her incision looks good so far. Her staples will come out on Monday afternoon. Please pray that she will stay infection free, as this is our biggest concern right now. Hannah's OT was really encouraging that she could tell a difference in Hannah looking more to the left as well as holding her head up in general. With so many of her professionals not giving much hope it is so nice to have someone that can see improvement and keep me working on and holding on to the goal that Hannah will get better. On an interesting note I had Sesame Street on for Hannah while she was in her stander. I never new if she really was aware of it or not, but today when I turned it off before the show was over Hannah started to fuss. As soon as I turned it back on she quit. This confirms to me that she's a lot more aware of things then her body allows her to express. Thank you for your continued prayers. Those prayers keep us going.

Hannah's hostpital visit update

Yesterday, March 4th, Hannah had her shunt removed at 7:30 am in the morning - of course the time during the surgery was the longest time - but she came out, woke up easily and drank her bottle just as she always does.

She played and kicked and stretched out - no mind the the wires everywhere!

We were blessed to have Jennifer's parents there during the surgery and afterwards as we waited for her to come to the room from recovery as well as our dear friend Cheri.

Hannah also had a few visitors including a pastor from Jennifer's parents' church as well as the student pastor from our church, Jody as well as our children/preschool director Robin. We thank them for lifting up our spirits and enjoyed spending time with each of them and our other visitors.

We have an awesome church home which continues to be at our side praying and being there for Hannah and our family and we cannot express enough thanks to each and everyone!

Thanks to everyone's prayers and obedience to lift her up in your prayers. We definitely aprpeciated them and give thanks for the continued prayers for us and for Hannah.

Hannah was kept overnight mainly so neurology could observe her "jerks" or what we had thought were seizures. It seemed like a time wasted though since when they tried to perform an EEG it didn't work because by Thursday morning Hannah was not ready to sleep! Needless to say, it continues to be a matter of frustration why we were told they weren't seizures, yet they are upping her meds (some are "seizure" meds) to try to control the jerks. We are not sure if we are going to stick with this neurologist either. We know they have other paitents, but they don't seem to ever listen to our point of view nor do what we ask them to do. In addition to that, they didn't even come until Thursday afternoon to observe Hannah or provide her release. Anyway, the neurlogist is a sore subject right now. Hopefully we can find one that takes Hannah's case seriously which we have yet to see or find in our current doctor.

As of this writing, Jennifer and Hannah are still waiting to be released. Hopefully they will leave shortly!

Please keep us in your prayers and we will update Hannah's blog as timely as we can!

No More Shunt!

This update is coming from the lab at Scottish Rite. The shunt came out this morning. She came through surgery great. We have to stay over night so that the neurologist can check on her seizures. However, Hannah is smiling, laughing, and in generally good spirits. Please pray that this will stay clear of infection and that she will never need another shunt. Please also pray that the neurologist will get a clear idea about the seizures and how to stop them. Thank you for your continued prayers. We know God is at work through all of you.