This week has been really busy. Monday, I took Joseph to the dentist and then turned around to take Hannah to the pediatrician. I took her in for a persistent cough, but she had an ear infection. Her Dr. is also going to try her on a new reflux drug. I know drugs help, but just wish someone could find the root of all these issues instead of just throwing meds at her. We took her for another EEG today, but we don't have the results back from that. The neurologist put her back on another seizure med since the zonagran is not working by itself. Yeah more meds!
I went to a support group for families with children with special needs. Two of the ladies there where great Christian women and I really enjoyed talking to them. They suggested a chiropractor that believes through helping open channels the body can heal itself. It certainly is an interesting idea. I'm going to look into it. Please pray that God will reveal answers to me, to Ben, and to the DRs to figure out what to do to help her.

Moving Along

Hannah had a pretty quiet week. YEAH! No Drs visits, just theropy. She did really well with theropy this week. We think Saturday night she said her first word... she said "JoJo", which for those of you who don't know, is the nickname we use for big brother Joseph. Speaking of Joseph, everything is fine with his heart. Thanks for praying for him.

Everyday we can tell that Hannah is getting stronger and we praise God for that. The new seizure med doesn't seem to be working so please pray that God will give the neurologists wisdom as to what will help her. I've added a picture of Hannah in her Creepster Crawler. Although its not her favorite thing in the world, it is definately helping her get stronger.

Today at the Atlanta Block Party

Today we went to the Atlanta Block Party - Hannah did awesome. There was plenty of great weather and fun for Hannah and Joseph. Hannah got to pet a rooster, baby pigs and a sheep. She seemed to enjoy getting out and enjoying life with her big brother and mommy and daddy.

We continue to pray that she continues to improve and absorb everything in her surroundings.

Our God is an awesome God!

Its Always Something

This week we had Hannah's genetics tested. They asked tons of questions, took measurements, and then took 7 viles of blood. They said if everything is normal we would get a letter in the mail in 3-4 weeks. If anything showed up they would call us. The Dr made the comment that anything that showed up would probably just be a name and not a solution, but we feel like there's a lot of value in a name. Especially when dealing with new Doctors, it would be so nice to have a name when they ask about the subdurals. We really feel like all of Hannah's issues are somehow related and we just want some answers.
She will see the endocrinologist in about a month. We are interested to see what they will say regarding her elevated hormone levels. Who knows maybe the answers will come then.
The neurologist took her off the Topamax because she never slept on it and it really increased her excessive tone. Now she's on Zonigran. So far she's sleeping better, but her seizures, spasms, jazz hands, jumps, whatever you want to call them have gotten worse. She just can't win!
As if we don't have enough on our plates, we found out that Hannah's 4 yr old brother Joseph has an irregular heartbeat and has to have an EKG done. Please pray that this is a minor problem, that he will outgrow with out intervention.
On a lighter note, Hannah's therapist brought her a creepster crawler. It looks like a low walker with a harness that goes under Hannah's belly to hold her up and help her learn to crawl. Its also really good for her head control. Most of this week she has just cried when we put her in it, but tonight she crawled from the living room to the front door with little fuss and very little help. Although this seems minor to a lot of you, for Hannah this was a major accomplishment. Please pray that she will continue to make improvements.