Thursday, December 3, 2009
Polar Express and Other Things
We had a great Thanksgiving at Ben's Parents house. The best part of the trip was taking the kids to ride the Polar Express. Both kids loved seeing Santa, riding the train, and getting a bell from Santa's sleigh. When Santa came in Hannah was very vocal to him, almost like she was trying to tell him what she wanted to for Christmas. In general Hannah is becoming more vocal and every now and then it sounds like she is making actual words. We have heard her "say" her name, Mom, I'm, and Hi. We are encouraged that maybe she is making progress in this area of development. However, on the flip side her seizures, or jerks or whatever they are when she sleeps have returned with a vengeance. She is jerk almost constantly even a little bit before she goes to sleep. She is waking up several times during the night screaming. I'm not sure if these jerks are hurting her or scaring her but they are definitely affecting her sleep (as well as mine!). She is also staring off more often and 2 of her therapists saw her do this this week and both asked if it was a seizure. When she comes out of those she's really fussy as well. Hannah will see her neurologist on Friday the 11th. Please pray that Dr. Weissman will really try to figure out what is going on and not just keep uping her meds. I really feel like there is more going on with Hannah then just CP, but nobody is really looking for the cause of all these symptoms. Please pray that Dr. Weissman will order new tests and really look at what's going on in Hannah brain. Thank you for your continued prayers.
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