I know it has been awhile, but the month of December has just flown by. We had a lovely holiday. Hannah got a lot of neat things. Her two favorites are a doll that Grammy made that says "Grammy Loves You" and an Elmo that Poppy adapted to use with a switch. Today with her vision therapist Hannah was really into "showing off" all her new things. She was really reaching and pushing different buttons. When the therapist asked Hannah where her Elmo guitar was she rolled over and looked right up at it. That was very cool. Her therapist took pictures of a lot of her toys on a plain background so that we can start introducing pictures for her to make choices with. This is all in hopes of helping her communicate better.
The visit with the neurologist didn't go as well as I had hoped. She was very pleased with Hannah's progress, however she was very busy and left the room before I got to ask her most of my questions. She did order a sleep study after I showed her video of Hannah's jumps. Before the video she was trying to tell me that she didn't think the jumps were seizures, but after the video she uped her seizure meds and ordered a sleep study. It will be on January 10th. She wonders if the jumps have something to do with Hannah's O2 levels. Although that has never seemed to be a problem, we will just have to wait and see what the sleep study says.
The neurologist also wants me to take Hannah to a new GI. She feels like the arching is still GI related. When I called the ped. to get a referral for the GIs that the neurologist had suggested, she wasn't really happy with any of them. SO I'm really wondering what this new GI will say. Hannah goes to him next Wednesday. Please pray that this GI will be nicer then the last one and will really try to help Hannah. I don't care if the arching is neurological or GI related, I just want someone to figure out a way to help Hannah stop doing it. Please pray that I will not be frustrated and that I keep pressing until I find someone who will actually help her.
May God Bless you and Yours with a Happy and Healthy 2010.