Update about seizures

For those of you who don't know, I took Hannah to the ER today b/c she was jumping (seizing) about 8 times a minute. As you know from the last post, she was sick last week and on top of the had run out of her seizure medication. Well she got back on her med, Monday night, but her jumps and general appearance/health just kept getting worse. She was very cranky and was jumping a lot. She started jumping while she was awake on Wednesday, which is very unusal. She usually just jumps in her sleep. On Thursday, I kept her out of school and took her to her pediatrician. Dr. Morgan saw her jumping and diagnosed an ear infection. She told me to call her neurologist to let them know how frequent she was jumping. I did but I grossly underestimated how often she was doing it. They told me to up her seizure med and call them back Monday. So then today, I took her to school, but the school made me come get her, b/c she was seizing so much. My friend went with me to get her and we sat in the parking lot and counted 8 and 9 jumps for the two minutes we timed it. So I called the neurologist back and after a lot of deliberation they told me to take her to the ER. We waited 4 hours and finally the neurologist wanted to just up her meds and send her home with out even seeing her after they told me to go to the ER. I was furious! The attending ER was mad too and actually called the neurologist and got him to come. So we waited a little bit longer and finally the neurologist on call (not her normal one) came. After he looked at Hannah for a while, and timed her jumps. He still upped her meds, but in a totally different way then he was originally planning on doing. He didn't do an EEG or anything like that which I would have preferred, but at least he finally came and at least a neurologist has finally see her jump in person. He told me to up her meds and to call the office on Monday to see how she's doing. Please pray that this flood of meds will make these jumps stop and that maybe since he's actually seen them now, they can truly figure out how to help her.