Last week was a rough week, because Hannah is teething, had an ear infection, and then got some weird fever virus that really wiped her out for a couple of days. She seems to be getting better, but still has a nasty cold like the rest of us in the house. She also saw her current neurologist last week. He said he did see some improvement in her development and really acted like he cared about trying to figure out about her seizures or jumps or whatever they are. He plans to admit her to do another video EEG in the hospital sometime this summer, but this time he is going to ween her off her meds so they will get a true picture of what's going on. If he always acted this attentive I may not want to switch. However, this video EEG will give the new neurologist some good information for when we see her in August.
This week, despite still not feeling great Hannah has been doing really well. She had a great PT session today. She spent the whole hour sitting up. She actually pulled her own head up 10 or 12 times instead of letting it drag behind. She also prop sat for 10 to 12 secs at a time. That's huge progress for her. Even the PT who's usually pretty guarded with her comments kept saying how impressed she was with Hannah this week. Yesterday she had her speech evaluation. I was really concerned that she wouldn't qualify, but SHE DID! The therapist said that she could tell Hannah has a lot going on in her mind that she just can't express yet. She said that's where the speech therapy will come in. I really liked that the therapist already has a plan of action for Hannah. She also had an evaluation this week with her GA Pines instructor. The instructor made the comment that Hannah can do a lot of things, its just that there is a long delay in her processing the incoming information and then getting her body to respond. She suggested teaching every one who deals with Hannah to give her a good 5 to 10 seconds when waiting for a response such as waving. She also suggested that we talk to Hannah like she's Helen Keller. Although she's not blind, it will really help her with speech and other areas to have her world described to her. So when you are talking to Hannah point things out to her giving great details. EX " Look Hannah there's a dog. He's black. Feel his soft fur. He says woof woof..." Thank you for your help with our sweet little girl and for your continued prayers for her and our family. We know that God has a huge plan for this little one.