We have been really busy lately. Hannah's therapist is really encouraging us to never let Hannah lay down on her back except when she is sleeping. So, we have been trying every different position you can imagine. Its really hard work for both us and Hannah, but it is helping her hold her head up longer. We broke down and have started the process of getting a wheelchair. On one hand that breaks my heart because its almost like admitting she may never walk. But on the other hand we are running into more and more places where they don't allow strollers but do allow wheelchairs, so for now it seems like the right thing to do. It takes 6 to 9 months to get a wheelchair and she will have to have one by the time she turns 3 so that's why we've started the process. She will go on April 23rd to be fitted for one. We are hoping that she will have it by the time we go to Disney but that will a miracle if that happens.
I took Hannah last week for her 18 mo check up and things look pretty good. She is finally starting to grow into her size and is now in the 50th percentile for height and weight. Her head is down to the 70th-90th percentile when it used to be up over 95th. Her ped. was very impressed at the progress she's making. She said that she is much more alert and is starting to self correct her position (mostly her head) and correct her eyes when they wonder. The Dr said those are really good signs of mental ability. We are hoping to have her evaluated for speech therapy soon. Hannah is starting to make more sounds and so we are hoping they can use those sounds to help Hannah make choices and eventually words. She will probably start by using switches, pictures and other augmentative communication devices to express herself. I guess that's all for now, please pray for peace for us as we come to terms with the wheelchair, pray that it will come in time for Disney and also she still has the rash on her face, please pray that it will go away before family pictures on Friday.