Finally Some Good News!

I took Hannah to the opthomologist on Thursday. He was very impressed in the progress she has made. He said that she doesn't have to wear the hated patches anymore (at least for the next 9 months), that her astigmatism has not changed when he would have expected it to to get worse, her eyes are still slightly crossed, but that surgery is not recommended at this time. He kept making comments about how alert and aware she was. It made me feel good to finally have a DR's appt go well.
On Tuesday my mom and I took Hannah to the neurologist. Although we were glad to hear that she does not have Tay Sachs or any other white matter diseases, we were a little disappointed to hear him say "her white matter is atrophied, which is just common in disabled kids." I sware most of there specialists have forgotton that this is somebody's baby and not just a chart. He did say that there seems to be no evidence that Hannah's problems are genetic in case we ever want to have another child. He is going to start weening her off seizures meds since they are now saying she doesn't have seizures.
After we left his office, we stopped on a bench outside to give Hannah a juice bottle. On the very first swallow she turned blue and eventually passed out. I have seen her turn blue several times, but this was by far the worst, and the only time she ever passed out. Fortunately, we were across the street from Scottish Rite, so we took her the ER. For once her larynotrachia malaysia came in handy, because we got to to go the front of the line. The put her in a trauma room first because there were no regular rooms. Once they suctioned out a big glob of mucus she started breathing better. However, she was still kinda out of it and eventually slept through a chest xray. I'm a little concerned that she actually had a seizure, but the hospital dismissed it as choking and sent us home. She was still a little lethargic Wednesday but seems to be fine now.
Thank you for continuing to remember this precious baby in your prayers. We know they are helping.