Hannah would not sleep during her EEG on Friday, so it was worthless. I have put in a call to have them do a twenty four hour EEG, but haven't heard back. I am not going to allow another regular EEG until they do the 24 hour one. At least that way she won't have to be sleep deprived. In the church nursery yesterday, the workers think she had a seizure like she did when she was really little. This is a little concerning b/c she hasn't been having them while she's been awake. We are also concerned that Hannah is starting to choke and turn blue again on her reflux. We are finally going to see a GI on Dec 3rd. Please pray for wisdom about the best way to treat her, even if that means doing the reflux surgery. Hannah's therapists are more and more convinced that her inability to sit up/hold her head up is do to it being uncomfortable and not just a strength issue. They think this because she purposefully pushes out of a sit rather then just falling over.
I called the genetics back and after a lot of run around, I was told that everything is fine and there is nothing abnormal with her genetics. Yet again we wasted time and energy. I just want one doctor somewhere to actually know what's wrong and how to make her better. I'm just so frustrated. Please pray for wisdom, guidance, and patience. Thank you for praying for Hannah and for us we need it.
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