Its Always Something

This week we had Hannah's genetics tested. They asked tons of questions, took measurements, and then took 7 viles of blood. They said if everything is normal we would get a letter in the mail in 3-4 weeks. If anything showed up they would call us. The Dr made the comment that anything that showed up would probably just be a name and not a solution, but we feel like there's a lot of value in a name. Especially when dealing with new Doctors, it would be so nice to have a name when they ask about the subdurals. We really feel like all of Hannah's issues are somehow related and we just want some answers.
She will see the endocrinologist in about a month. We are interested to see what they will say regarding her elevated hormone levels. Who knows maybe the answers will come then.
The neurologist took her off the Topamax because she never slept on it and it really increased her excessive tone. Now she's on Zonigran. So far she's sleeping better, but her seizures, spasms, jazz hands, jumps, whatever you want to call them have gotten worse. She just can't win!
As if we don't have enough on our plates, we found out that Hannah's 4 yr old brother Joseph has an irregular heartbeat and has to have an EKG done. Please pray that this is a minor problem, that he will outgrow with out intervention.
On a lighter note, Hannah's therapist brought her a creepster crawler. It looks like a low walker with a harness that goes under Hannah's belly to hold her up and help her learn to crawl. Its also really good for her head control. Most of this week she has just cried when we put her in it, but tonight she crawled from the living room to the front door with little fuss and very little help. Although this seems minor to a lot of you, for Hannah this was a major accomplishment. Please pray that she will continue to make improvements.